Chordoma Community Guide
If you have just been diagnosed with a Chordoma, you are probably terrified. Cancer is scary; given the typical location of Chordoma tumors — usually in the clivus, the sacrum, or the coccyx — Chordoma is very scary. You will need surgery; you probably need radiation; and, you might need to try experimental chemotherapy. That's the admittedly bad news.
There is also good news. There are a lot of Chordoma survivors who are more than willing to help you find the best treatment and offer support. This might not be the club anyone would want to join, but it is comprised of some pretty fantastic people.
Furthermore, there is more active Chordoma research than ever before, thanks to dedicated researchers and the Chordoma Foundation. There is reason to hope for a much better treatment -- or cure -- in the future; one that will benefit you. Assuming the funds can be raised, there is reason to be cautiously optimistic.