Greetings!

Submitted by bdorland on Tue, 08/02/2011 - 19:25
Forums: 
Sacral Chordoma

Hello to my fellow sacral chordoma survivors and friends!

**kicks the tires**

Nice rig! Well done, Johnny!

I'm on my usual summer travel schedule right now, so I won't be able to follow up here reliably, but I'm very pleased to put up the first sacral post. I recently learned that I have another sacral recurrence, so I'll be haunting the wards of JHH in a few weeks. Otherwise, things are great. I'm at Oxford University right now, enjoying a very COOL English summer, which is much better than what I hear is the norm back home. I hope you are all doing well.

--Bill

johnny_b's picture

by johnny_b on Tue, 08/02/2011 - 19:30

I called UMD earlier and a nice woman told me you were in Oxford. I didn't email because I assumed the time difference would have shoved my email down in your queue.

I'm sorry to hear about your recurrence. Please keep us updated. I am, however, glad that you are here.

bdorland's picture

by bdorland on Tue, 08/02/2011 - 20:24

You are roughly right -- two hours later, it is 1:30 AM here and I've just made it through the day's email. Note however, that I always scan for interesting email first! So don't hesitate, my friend.

Great looking site!

shozgirlnyc's picture

by shozgirlnyc on Wed, 08/03/2011 - 18:40

So glad you were number one but not happy to read the rest of your news. We must stop this disease. Please keep us posted. Big hug, sharon

bdorland's picture

by bdorland on Wed, 08/03/2011 - 20:59

Hi Sharon -- this round shouldn't be tough. Thanks for the hug. Here's one for you: (((Sharon)))

by najones11 on Wed, 08/03/2011 - 22:14

Sorry to hear about the new recurrence, but know you will handle it with your usual aplomb and certitude. I hope all will be well and that JH will take the matter into their reliable hands and get it under control. thinking of you, Norma

shozgirlnyc's picture

by shozgirlnyc on Thu, 08/04/2011 - 19:51

Glad to hear this Bill...well...you know what I mean!!
Sharon

bdorland's picture

by bdorland on Sun, 08/07/2011 - 12:48

So how do we get the chordoma community to move over to this new site? Is there a plan already in place?

johnny_b's picture

by johnny_b on Mon, 08/08/2011 - 13:15

Ann posted the initial announcement about this community. Right now, it's globing up members, including the particularly active ones. I'll issue email announcements at each milestone (e.g. 100 members), hoping to bring back people who have become inactive.

So formal plan, no; organic plan, yes.

Marybe's picture

by Marybe on Mon, 08/08/2011 - 16:19

Bill, Sorry to hear of your reoccurrence. I am sure JHH will take good care of you.
Mary

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