Recurrences
Forums:
Since I am in the midst of a cycle of recurrence and treatment, I'm wondering how many others are out there like me. Anyone else in the sacral group dealing with 3+ recurrences? Mine seem to be happening every couple of years (so far).
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Recurrences
Sorry for this Bill..what are they able to do? I hope there are options.
Sharon/NYC
In one year, my husband has
In one year, my husband has had two surgeries and still has residual tumor according to a TAC that made him a day after his second surgery, and no one has had more treatment, we do not know what to do?, Since we have the economic resources to pursue other options, but it would be helpful to know if there are institutions or NGOs that can help
Other options
Nury: Right now, the number of users in this community has dropped significantly. It's my fault: I need to add a better notification system for new posts.
Has he already had radiation? Have you contacted any of the clinical trials listed on the Chordoma Foundation's website: http://www.chordomafoundation.org/treatment/clinicaltrials.aspx
Recurrence
Yes .my mother had her second recurrence within 2 yrs. now it is 6.5 cm.we are attempting Debulking followed by cyerknife this time.
If you don't mind could you tell me what was the size when you had recurrences and what treatment did you go far?
Thank you
Sree
Recurrent sacral chordoma
My mother had 2 nd recurrence.as the tumor is too big for cyberknife docs did Debulking 2 wks ago.she recovered from surgery.Docs now recommending imatinib therapy.i don't know whether that is a good option or not but we have to do something to stop this tumor growing.
If anybody has any suggestions please let me know.